Disability Leadership & Lateral Violence

Everyone in the disability community can take some responsibility to respond with respect and care.

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What is it and how do we deal with it? 

This article is about something which can be a huge issue for people in the Disabled community – status anxiety and ‘tall poppy syndrome’. These issues relate to people attacking others or making uncharitable statements about people within the community who they perceive are somehow doing better than them.

The basis of this is often a combination of insecurity and also responding to the oppression that we face as Disabled people by attacking someone within the community rather than ‘fighting the power.’ Oppressed, intersectional groups often face this issue which is known as ‘lateral violence’, where anger at disadvantage and discrimination is turned inwards and results in jealousy and undermining others. Sadly our community is not immune from the issue. In fact I see it quite a lot.

I think a lot of people are not even aware this is an issue for them. A ‘lateral violence’ response is a broader social issue than one individual being snippy with a well-known person in their community.

Lateral violence essentially involves instead of fighting oppression, oppressed people turning their anger against others in their community and these others tend to be people who are perceived as somehow more successful. So not only is attacking other Disabled people because of their success really unhelpful on an individual level, it is also deferred anger which would be much better used to address issues in society and to fight ableism. Leadership in the community should help enable people to see beyond rivalry. In fact this is an area where everyone in the community can take some leadership and responsibility to respond with respect and care, not lateral violence.

This is not a criticism or attack on people who feel jealous. There is a lot driving that thinking and behaviour and it goes beyond individuals. Lateral violence, while very unhelpful, is an indicator of oppression of itself and happens across most communities that face disadvantage. So while placing blame is unhelpful,  it is important to be aware of what it looks like and some ways to address the issue.

I am an autistic advocate and these days I have quite a big profile. While the primary function of my profile is to get my message to an audience, I am sometimes criticised for being well-known. The idea that I am focussed only on making money is one criticism – evidenced through people complaining when I have a book published and promote it. I am a very honest and straightforward person and take words on face value so it has taken many years to work out that people saying ’Jeanette just wants to make money with their books’ is actually almost certainly being driven by jealousy rather than any high ideals of socialism! I meet people who are inexplicably rude to me and it takes me some time to work out that it is due to a ‘fame thing’ on their part rather than anything unethical or unpleasant that I may have done or said. I often get quizzed by people who seem to want me to say something ‘wrong’ or to disprove whatever I am saying. It’s exhausting!

I can guarantee that the people considered famous within the disability community and those in positions leadership have their own struggles and challenges which are not solved by media appearances or book deals or other accomplishments..

Some strategies include:

  • Being in a position of leadership can exacerbate this issue and lead others to criticise and blame. It is important to respond in a way that demonstrates leadership and not react in a personal, defensive way (although this can be hard)
  • See it for what it is. It usually has nothing to do with the person who is apparently ‘too successful’
  • Take responsibility for your thoughts, words and actions
  • Use your position of leadership to help address this – call people on it if you can and demonstrate respect and inclusion in your own expression
  • Remember that many people have impostor syndrome. People may not see their own value but instead feel intimidated by the actions and the ‘success’ of others
  • Share information on lateral violence with others. If you can, be a champion of addressing and calling out lateral violence. If we all did that it would be much less of an issue.

Addressing status anxiety and lateral violence is essential if we want to make a better world. Just imagine if all that energy people spent being jealous and insecure was directed instead to addressing the bigger issues that Disabled people face. Our leaders play a key part in achieving that aim.

 

Guest blog by Yenn Purkis:

Yenn (formerly Jeanette) Purkis is an autistic and non-binary author, advocate and presenter. They are active in the Disabled community, have published six books, facilitated a women’s group since 2011 and given a large number of presentations, including one for TEDx Canberra. Yenn is also a Disability leadership Institute member.

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Culture Shifting

Its time to become truly inclusive and abandon advisory groups.

by Christina Ryan – DLI CEO

 

One of the perennial topics of conversation about diversity centres on how to shift culture. We need to shift culture so that diverse people will be attracted to an organisation and stay as employees or customers.

 

Recently I examined the ways that organisations globally have shifted to embed their culture to better suit their consumer group / target market. This global scan led me to wondering if we haven’t been coming at the whole culture conversation from the wrong angle.

 

Will we ever shift culture if we expect diverse people to come to us and become us? How is that diversity? Isn’t it more like assimilation? Won’t that just perpetuate the existing exclusion and marginalisation?

 

There are organisations that have changed their culture and embedded a more inclusive one. How have they done this?

 

Perhaps we are too hung up on ticking the diversity box, and not learning the lessons of other elements of business practice, like marketing? Marketing uses techniques which speak directly to the consumer, based on understanding that consumer. The most potent way to go about this is to have people from a particular demographic on both sides of the organisational experience, as employees as well as consumers, so that the conversation is authentic.

 

In an attempt to better understand consumers, many organisations have established advisory bodies of consumers which provide advice to be fed into the day to day operations of the organisation. This model attempts to bring the voice of consumers into board rooms and executive suites, but it does it at arm’s length. There is no real evidence that such advice is listened to, or acted on, or that it makes a difference to the consumer experience, or more importantly to how the organisation runs every day. More critically, there is strong evidence that the advice is simply ignored if it is inconvenient or poorly understood. Such examples include the National Disability Insurance Agency in Australia, and US insurance company advisory bodies (Anthem, United Healthcare, and Centene), which have clear structures in place that don’t necessarily translate into practice as a stronger consumer voice.

 

Organisations with advisory bodies then require a key person who acts as a channel to ensure that the “advice” is transferred into the organisation as valued input. This transfer doesn’t always happen effectively. Additionally, when that key person departs, or the executive regime changes, the value of the advisory body faces significant risk with many not being used further, or no longer being valued for their contribution. Advisory bodies then become tokens for publicity or marketing purposes and often do not contribute meaningfully, if at all, to organisational policy or practice.

 

The organisations that do have strong evidence of a consumer voice that contributes to how the organisation is run every day, and how the culture is designed to support a strong and positive consumer experience, are those that employ significant numbers of disabled people (or other target diversity consumer group) and which have a board that has a strong presence of that target group. It is these organisations which have experienced the culture shift required to embed long term consumer engagement. It is these organisations which are ahead of the global pack. (National Council on Disability (US), Association of Community Living (US), Think local act personal (UK) and Uloba (Norway)).

 

A key feature of organisations with a strong internal presence of consumer voice is that the culture is shifted from within in a sustainable way. This culture shift does not rely on individual key people, rather it is shifted by having a critical mass of the population group within the organisation, throughout its operations. Therefore, leading companies now work to build diversity in their executive and governance teams, particularly featuring population groups that they are targeting their marketing towards. This shift has been underway for decades, primarily featuring gender and race diversity, and now also broader diversity groups including disability.

 

The newly released Getting to Equal: The Disability Inclusion Advantage features robust data on the economic and marketing benefits of having good numbers of target market demographic within the workforce of an organisation.

 

There are several features of organisations that build consumer voices into their entire operation to “make it real”; these include:

  • significant buy in from the top echelons of the organisations most notably at CEO level,
  • strong representation from the consumer demographic in the board room, and
  • a high proportion of employees with consumer / target market experience.

Without these contributing factors organisations are vulnerable to slippage in their intentions because the change is about what is being done “to” the consumers not “with” the consumers.

 

To affect a real culture shift to become an organisation which understands its target market/s there will, therefore, need to be considerable work done to bring the consumer voice into the board room and the staff group including at executive team level. Most importantly, the shift will need to be driven by the CEO to ensure total organisation embedding. See “A Blinding Flash of the Obvious” which highlights why having your consumers in your executive team and boardroom is critical. This example is about gender, when a company realised that it couldn’t successfully sell its product to women without having women as part of its board and executive.

 

It has been long established that having women in board rooms and executive suites is good for business, particularly if an organisation wants to connect authentically with the female population, yet, curiously, there is not a similar understanding that the same strategies are required for other diversity groups like disabled people. There remains an assumption that disabled people can be spoken “for” and “to”. This thinking was abandoned decades ago in relation to women yet persists in relation to disabled people.

 

When a consumer / target market voice is embedded within an organisation, whatever that organisation does, it provides a further layer of engagement with its relevant community, and through that, a more robust approach to appropriate structures and processes.

 

Fundamentally, the culture is shifted organically through critical mass, rather than through one or two key people driving it. This provides for a long-term sustainable culture shift that is not reliant on a named process or specific key people.

 

It is time to question the continuing use of advisory groups and token consumer voices. The evidence from other diversity groups strongly suggests that the only way to speak to a target market in a sustainable way is to include people from that target market throughout all levels of an organisation, and to commit to shifting culture through “becoming” part of that culture, rather than standing outside expecting the culture, and its consumers, to come to you.

 

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Your 2019 leadership development plan

How will your leadership grow in 2019?

By Christina Ryan – DLI CEO

 

As the year draws to a close it’s a great time to reflect of what you’ve achieved and what you plan for 2019.

 

How did your leadership grow in 2018? Have you added new skills, grown some specific attributes or personal qualities, gained confidence or built knowledge in a new area?

 

What’s your personal leadership development plan for 2019? Here are a few tips:

 

  1. Identify a skill that you’d like to build. Just one. It might be improving your networking, getting sharper at messaging, or building your meeting effectiveness. Maybe you’d like to get better at public speaking or doing media. Only you know your leadership goals, so identify a skill that will assist you to get there and spend the next year focusing on building it and gaining confidence in using it.

 

The purpose of focussing on one skill is to make sure you can do it! Sometimes we give ourselves big lists and create high expectations that we then get too busy to fulfil. Make your one skill an achievable one that you can keep coming back to without going off track too much.

 

  1. Which personal quality or attribute are you growing in 2019? I spent 2018 practicing receiving – allowing myself to accept gifts and compliments from others. It was a tough haul sometimes, but after a year of focussing on this its easier now than when I started.

 

What will you focus on? Will it be patience, generosity, responsibility, or risk taking? Perhaps you would like to grow your self-awareness or emotional intelligence? Each day remind yourself that you are doing this and when you have an opportunity to practice your personal quality, notice it and note how you use it. Over time it will shift, and you will find it easier to use consciously.

 

  1. What will you be curious about in 2019? Select one area to avoid overwhelming yourself. Will it be Artificial Intelligence, governance procedures, successful team leading, change management? The Future Shapers are diving deep into what defines collaboration. Your subject could be anything. Find a subject that sparks your interest and read about it. Go outside your usual reading networks, check out the local library, and get online to find more. Ask your peers what they know about the subject and whether they have any favourite books or articles. Dive right in and build your knowledge!

 

Don’t forget, this is about how you do things, not what you are doing. So, keep it manageable, keep it specific. Enjoy your learning!

 

There’s your 2019 plan!

  1. A skill to build
  2. A personal quality to grow
  3. A subject to know more about
  4. Your DLI networking group to bounce off and grow with

 

Perhaps 2019 is your year to step up and focus on major leadership development by doing the Future Shapers or undertake intensive individual development through coaching. Contact me directly if 2019 is your year to push your leadership development.

 

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Why aren’t you a charity?

Being an entrepreneur isn’t always about the money.

By Christina Ryan – DLI CEO

 

“Shouldn’t you be a charity?”

 

Establishing the Disability Leadership Institute has been a thoroughly enjoyable experience. I’m doing something that I love while contributing to my community every day.

 

It’s also been a weird experience every day, as I come across prejudice and assumptions that I’ve never dealt with before. There’s that big assumption that disabled people aren’t leaders and can’t do “proper” leadership – whatever that is – but more recently I’ve come across a recurring assumption that if your work is about disability then you must be a charity.

 

I was chatting with a group of disability entrepreneurs the other day and somehow the conversation got onto charitable status and whether we should be shaping our businesses to be a charity. Everyone in the group had rejected the idea of charitable status, which was a fascinating discovery.

 

Every single one of these businesses had the potential to be a charity and all were working to advance the status of disabled people, while also employing people with disabilities in their enterprises.

 

For some being a charity would limit their enterprise’s capacity to operate as a business, particularly into the future as growth occurred. Fair enough, this is good business sense.

 

A clear thread running through the group, though, was that being a charity would reduce the status of their work. There is a long history of charities and disability going back centuries. Unfortunately, a lot of that history is clouded with pain, segregation and abuse. Many people with disabilities have experienced disempowerment through being “charity cases”. Most of us still exist in a whirl of excessive bureaucracy just to get through each day as a disabled person.

 

When your enterprise is about advancing the status of disabled people, being a charity is almost like sleeping with the enemy.

 

All the enterprises belonging to the group were social enterprises, although none had formal certification as such. All of them would pass charity status expectations without fail, yet none of them wanted to be charities because it would demean their community to do so. It would also add more bureaucracy to their existing excessive levels of daily disability bureaucracy.

 

All of these enterprises would save money by being a charity, yet they didn’t want to go there. So, no tax concessions, no salary packaging for their staff, no capacity to receive donations.

 

Yet they are doing just as much “charitable” work as most of the charities I know (and I know thousands).

 

Being an entrepreneur isn’t always about the money. For many of us in the disability community it is about being respected as “real” business people who run credible profit-making enterprises. It is about being able to do business our way, while changing the way “doing business” is understood.

 

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So Many Assumptions

disabled people can’t do leadership

By Christina Ryan, DLI CEO

 

Its kind of strange, when you work alongside such impressive people every day you forget that the rest of the world still assumes that disabled people can’t do leadership.

 

Then there’s the assumption that we are all still at entry level and just lack confidence and training, that’s why we don’t get jobs or land board positions.

 

DLI member Jeanette Purkis highlighted some classic assumptions in a recent daily meme: “I have been told that as an autistic person I will always lack empathy, that I cannot have ‘proper’ friendships, will never feel love and will have to live with my parents for the rest of my life … and that was from the non-bullies!”

 

Then there was the conversation in the Future Shapers intensive workshop about a participant being sent off to “proper leadership training” after this if they were up for it. This to someone who was currently undertaking the same leadership development work that is compulsory for senior Federal Police teams.

 

What about the disability minister who referred me to the Paralympics Committee if I was looking for disability leaders to participate in the Future Shapers program. I wasn’t, I was suggesting that this minister might consider sponsoring someone from their jurisdiction to undertake the program, but apparently the only disability leaders they could envisage were elite sportspeople.

 

Oh, and the state bureaucrat who told me that “disabled people just can’t do most jobs in the public sector”.

 

Several leaders have contacted me recently after doing a well-known governance course. Their access needs hadn’t been well supported and they struggled to complete the training. It was assumed that they could manage if they just tried harder to overcome these access barriers, if they were genuine about their leadership development.

 

Then the Doing It Differently report noted that employees with disabilities are passed over for professional development opportunities while colleagues in their team are fast tracked for leadership, identified for development, or strongly encouraged to apply for senior positions.

 

Seeing a common thread here?

 

It appears that a major barrier to disability leaders achieving their aspirations is the attitudes of those around them, not a lack of ability or expertise or capacity.

 

Many people assume they are being inclusive, yet they are still making assumptions about disability leaders that act as real barriers to their leadership development.

 

Meaning well isn’t a solution, although it’s important, and it won’t overcome unconscious bias. For that we need disability leadership to be recognised and supported. Disability leadership is a thing and it is impressive and powerful and must be given the opportunity to flourish.

 

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Hostile Environments?

Learning workplace flexibility from disability entrepreneurs

By Christina Ryan – DLI CEO

 

Learning workplace flexibility from disability entrepreneurs

 

Recently, I had the enormous pleasure of speaking at a forum on disability entrepreneurship as part of the Victorian Small Business Festival. Thanks to AFDO for pulling it together. It was a wonderful event bringing together a panel of disabled entrepreneurs, in a room full of disabled entrepreneurs and aspiring entrepreneurs. The event sold out in a day and a larger room was found, which indicates enormous interest in the subject.

 

Apparently people with disabilities are more likely than the general population to become entrepreneurs, yet curiously there are no programs to support this and no real recognition of this entire sector. Of course, the Disability Leadership Institute has many entrepreneurs as members and provides support for them to do their work, including peer groups.

 

Something quite interesting happened during the first panel event of the day – several of us realised that we were now in better shape than we’d been for a long time, despite working the long hours that entrepreneurship often demands. Entrepreneurs talked about being in less pain, having better mental wellbeing, sleeping better, having fewer down days, being able to reduce medication, and much more.

 

I wondered what this was about. How was it that so many disability entrepreneurs were finding their general health and wellbeing had improved, even though they were working harder than ever?

 

It seems to come down to 2 key factors:

 

  1. Being able to work flexibly and to your own rhythm.

 

Organisations still haven’t quite nailed flexible work and what it looks like. Having to turn up at an office between certain hours is very restrictive, but there’s a lot more to it than that. Disability entrepreneurs at the forum talked about napping in the afternoon before doing a few more hours before dinner; or using their middle of the night sleeplessness to best effect by talking to international colleagues or doing website updates; or starting early or late depending on individual biorhythms.

 

We are all very different and running our own businesses means we can work to our own beat and in our own way.

 

The upside of this is that you can work more hours because you can work when it suits you and when you are at your best. Those who have big peaks and troughs of energy / being at their best, were better able to push hard when they could and better able to manage downtime rather than trying to work through it to damaging effect.

 

It raises the question: is the 4 day week more effective for other reasons. Part time isn’t necessarily less capacity, it might actually create more.

 

  1. Not being subjected to hostile environments

 

It doesn’t seem to matter how much you love your job, or your team, the wider world is still an inherently hostile environment for most disabled people. Doors are too heavy, equipment is often not quite right, things happen unexpectedly to confront your equilibrium, and (awkwardly) there is a constant undercurrent of not quite appropriate commentary or inquiry about your disability.

 

Even at the most inclusive workplaces it can feel difficult to ask for something to be repeated yet again because a colleague forgot to face you during a meeting, or the background noise overrode what they said.

 

Asking for assistance, generally, can be very difficult and often doesn’t happen. Equipment takes months to arrive and then isn’t quite right, or your supervisor becomes obsessive with getting it right and you feel an obligation to be grateful while wishing they’d just let it go for a bit.

 

For those who are not openly disabled the pressures are even greater as they attempt to conceal their disability or minimise the environment’s impact on it.

 

Those in team leading positions often cite the need to gloss over when they aren’t feeling well to maintain team morale.

 

So, it doesn’t seem to matter where you work or who with, it grinds you down over time. This leads to poorer health and wellbeing, greater pain levels, less mental equilibrium and greater difficulty in sustaining peak performance.

 

Of course, the answer isn’t for everyone to become an entrepreneur or to work from their own location, that’s an unacceptable return to segregation for people with disabilities.

 

What becomes clear, though, is that we can never assume that the workplace we offer is “safe” for someone, or that it will work. We are still a long way from fully inclusive workplaces that are physically and emotionally safe for people with disabilities.

 

Complacency must be avoided as we learn valuable lessons about genuine flexibility, and what “safe” looks like, from disability entrepreneurs. As technology continues to take us places we never expected there are so many options arising for workplaces of the future and how they might operate. Flexibility has a long way to go and it means a lot more than just “working from home”.

 

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What I read on holidays

By Christina Ryan – DLI CEO

 

I read, a lot. Being on holiday really gives me time to dig a bit deeper and read a lot more than I usually would because I have a lot more down time while I’m up and about.

 

One thing I have always stuck to: I never read anything except fiction in bed. Its just how it works for me. Once I switch off I prefer to give my brain time to travel and I particularly love science fiction (got that from my parents), fantasy, and dystopian stuff.

 

I’m really privileged because my local public library runs a home library service for disabled people and others who struggle with getting to the library or getting around the library. Every month I drop in, with an assistant, and pick up a sack of books. Sometimes they’re great, sometimes they’re awful, but there is always something in there that I never would have read otherwise and love. I’ve found some great authors this way and can’t speak highly enough of the volunteers at the Home Library Service. It’s like Christmas all year.

 

When I’m up and about and/or working I read a lot of articles that might be of interest to our members, but I also read heaps of leadership and management stuff that sparks interest for me. I got lucky this holiday with the new edition of Harvard Business Review arriving the week before I went away, so I got some great breakfast reading easily packaged.

 

Having more time for reading is a gift. It’s a great reminder why holidays are good for so many reasons. Here’s the list of what I read during my holiday.

 

Articles:

 

The latest Harvard Business Review did this great series on how CEOs manage their time and how that reflects on their leadership:

 

  1. How CEOs Manage Time
  2. What Do CEOs Actually Do?
  3. One CEO’s Approach to Managing His Calendar

 

 

How to Prepare for a Panel by Dorie Clark in Harvard Business Review.

 

4 Questions to Ask Yourself on Your Next Vacation by Art Markman in Fast Company.

 

Do Your Employees Feel Respected? By Kristie Rogers in Harvard Business Review

 

The Other Diversity Dividend by Paul Gompers and Silpa Kovvali in Harvard Business Review

 

Creating a Purpose Driven Organization by Robert E. Quinn and Anjan V. Thakor in Harvard Business Review

 

Books:

 

Blue Ocean Shift by W. Chan Kim and Renée Mauborgne

 

Remembering the Myall Creek Massacre edited by Jane Lydon and Lyndall Ryan

 

Listening:

 

I listened to this podcast about Quantum Computing on Westpac Wire

 

And because:

The Best Business Book You’ll Read All Year Will Be a Novel by Art Markman in Fast Company

I read fiction, and lots of it:

 

The Good People by Hannah Kent

Stiletto by Daniel O’Malley (he’s a Canberra boy!)

Obelisk by Stephen Baxter

Eternity by Greg Bear

 

I still ended up with a stack of reading that I wanted to get to but didn’t manage. That’s okay, holidays are also important for not being too structured and for getting caught up with unexpected fun things!

 

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